By Kieron JH | Published: July 29, 2025 |

It’s easy to feel invisible when you’re just one patient among many, especially when navigating a healthcare system that routinely forgets what dignity looks like. But sometimes, speaking out loud enough, and with evidence behind you, makes it impossible to be ignored.

After weeks of delays, confusion, and distress, IPS Pharma has finally issued a formal apology. They’ve acknowledged serious issues with their internal systems, admitted that patient safety risks were real, and committed to retraining their staff and tightening their protocols. They’ve even acknowledged that indirect identifiability under GDPR is valid – a point they previously deflected.

Let’s be clear. None of this came willingly. It followed formal escalation, a rights-based advocacy campaign, and the publication of our public interest article:

UK Medical Cannabis Delivery: How Specialist Care Providers Fail Patients

At first, we were met with silence. Then with evasion. Then with vague apologies and bureaucratic smokescreens. But we kept going – because the stakes were too high not to.

What a Small Platform Can Still Achieve

This is what happens when even a small platform is used with clarity, precision, and a bit of righteous fire. This wasn’t about scoring points or causing a stir. It was about making sure that disabled, neurodivergent, and vulnerable patients aren’t put at risk and then gaslit into silence.

IPS Pharma now says it is “reviewing broader implications for internal policies.” That is not just a win for one patient. That is a system being forced to reckon with its shortcomings – even if only temporarily.

Not Justice, but Movement

Let’s not overstate it – this isn’t justice. Not yet. There are still real questions about equality compliance, complaint handling, and whether IPS Pharma truly grasps the duty it owes to disabled patients. But it is movement. And movement matters.

So if you’re reading this and feeling powerless, wondering whether your voice is too small to matter – let this be your reminder:

You don’t need a platform the size of the BBC. You just need one that won’t blink.

We’ll keep going. Because someone has to.

Written by: Kieron JH

Published by: The Reasonable Adjustment

Contact: [email protected]